**Our LiL' Miracle Boy**

Friday, January 24, 2014

He's Off ECMO!!

Well we are trying it ONE more time. We are really really hoping today is the day because we are running out of options, and unfortunately my sweet baby can't live forever on a heart/lung machine. His brain is bleeding due to ECMO is which causing more and more brain damage by the minute. We did a trial before taking him to the OR to make sure he was pretty certain to come off. I kept everything in my body and held my breath throughout the whole trial praying & hoping he'd tolerate it which he did, so that mean my baby boy would wheel down to the OR for one more time.
We wheeled our baby down, said goodbye, and walked back to his room. These last 3 times have been harder than ever because there are very high chances our surgeon could be coming back to report, "Your baby is gone" I'm scared to death. I hate those words & I don't ever want to hear them. Our surgeon is such a stud. We REALLY like him. He came and chatted with us before he went in to start. He just talked to us about the same things and told us how likely DEATH was at this point. He was hopeful we'd get him off.
They let us stay in Tytan's ICU room this time instead of going back to the surgery room. The surgery room is hard especially in a time like this. Most of the people in there are having simple surgeries. Not many are in there wondering if their child's heart is still beating. I think they all knew the chances of our little guy not surviving, so they wanted to keep us in a secluded area in case of they had to give us "that talk".
About 2 or so hours after sending our baby off, our life savor Rusty, our surgeon, came back with good news. They were successfully able to get Tytan off Life Support. What a relief! My baby boy's heart was now keeping him going without a machine. We were still nowhere safe but it was an absolute HUGE step in the right direction. Our little man was soon wheeled back to his room with one less machine.
I am so grateful for a loving Heavenly Father who is answering our prayers and allowing us to see miracles in our sons life.
He's off ECMO!

Look at all those machines keeping our tiny little guy going! So grateful for Modern Medicine!

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