After 3 weeks of heck and Tytan fighting like no other, we were on
oxygen and able to be moved to the floor. On the floor was much different than
the CICU. It was much more involved as a parent, and he didn't have a nurse of
his own. He shared one with like 3 or so other patients, so on the floor I
never left him. Not even at nights. My mom and Az would just come visit me
there. On the floor we pretty much just cuddled and watched TV all day. I did
have fun sponge bathing him, and getting him ready in cute clothes everyday!!
He was weaned down on his O2 and also worked a lot of sucking. He failed his
swallow study, so he had to continue with the feeding tube. This mom even had
to insert a feeding tube into her lil guy's stomach. Talk about scary. I
actually cried doing it because I was so afraid of hurting him. We spent 6 days
there and they showed up one day and said, "You are going home" I was
shocked. We were planning on being there longer, but so glad we could FINALLY
go home as a family!! :]
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